Tuesday, 30 April 2013

Thrombosis Support & Lifeblood..... a match made in heaven?

So tomorrow I have a meeting with Lifeblood:The Thrombosis Charity trustees to put forward my Thrombosis Support idea and how we can work together, and convince them to do so hopefully!

As many of you know this blog was set up not only for me to have a little moan about how thrombosis has affected me and my daily dealings with it, but also because I am passionate about creating a support network for those affected by thrombosis. It is one thing to moan about what isn't in place and what is needed, and quite another to actually get off your backside and do something about it- that is what I am trying to do.

I have had big ideas, and high hopes of what Thrombosis Support can be and visions of advertising campaigns in the future and national races in aid of it, and then often feel slightly deflated when I realise I am just one person trying to make something happen. That is one of the reasons that I want to work with Lifeblood, under their umbrella as it where. They are an established charity with I feel a hole, support, that needs to be fronted and filled- I think that is where my ideas come in. I did not realise just how much red tape there is around setting up a charity and I certainly do not often have the patience with form filling in, I think together we can really help others and make a difference. Also one of things I have noticed is that a lot of the fundraising for Lifeblood is done by those who have been affected by Thrombosis, be that have had an episode themselves, know someone who has been or who has sadly lost a loved one. I think to continue the support Lifeblood so desperately needs from the public there needs to be something in place for them, (not to belittle what Lifeblood already do as that is brilliant a too needed).  A support network where they can interact on a number of different levels with people who know what they are going through, where they can offer each other coping methods, advice, support, compassion and friendship. I go from my own experience, I desperately wanted to communicate with someone who understood the emotional side of my thrombosis, and the continuing effects. I remember my consultant writing in a report regarding my PTS and compression stockings that "the patient should wear full length compression stockings from first thing in the morning till last thing at night, even when on holiday and in a hot climate, though a little discomfort may be felt she will soon get used to it." I really wanted to call him and say "you try wearing them all day in a hot climate!" cheek I thought you have no idea. I needed humility and reality about how my life was now going to be. I really hope that that is what I can offer.

The meeting is tomorrow- if any of you have anything you would like me to say from your personal opinion of what is needed, please let me know.

Thanks for reading and if you're able to please help me raise money for Lifeblood The Thrombosis Charity please go to my page and lets hope that Thrombosis Support can become one of their new initiatives!


Help me, help others, help themselves

Saturday, 20 April 2013

National Thrombosis Awareness Week 6th-10th May Swimathon Bakeoff!

So I started the day with a swim and then dropped off a batch of cakes to my friend for her birthday- felt like a national thrombosis awareness week fundraising dummy run!

I will be swimming 8km thats 400 lengths and taking 32 orders for cakes.

Maybe you have a birthday coming up and fancy a cake, perhaps it would be the perfect treat for all of your work colleagues or maybe you just like eating cake and this is the perfect excuse!

Order forms can be downloaded here

If you don't fancy any cakes and just want to sponsor me for swimming check out my page:


Thank you

Also I will be doing a raffle!
Tickets cost £1 per ticket £5 a strip, buy for you chance to win a 13" uber cake!!!


Wednesday, 17 April 2013

National Thrombosis Week 2013 6th-10th May

After the success of last year I am getting myself geared up for this years National Thrombosis Week. I was blown away last year by the generosity and was able to raise over £1000 for Lifeblood and £200 for Thrombosis Support, I am hoping to smash that target this year!.

With that in mind, not only am I going to do something to push my body, I am going to something nice for all of you!

Some of you may now I am partial to a little bit of baking, and will be baking a number of different cakes and breads for you to purchase- I will give a guide price but hey its charity so if you want to purchase them for more I would happy for you to do so!

Here are a sample of some cakes I have previously made:

Details of my fundraising page can be found at :